Hello Ginger,

Thanks for your response, and for your support. With a compromised immune system, End Stage Kidney Disease as well as leukemia - you have a lot on your plate; my heart goes out to you. I wonder how I/we may be of support to you.
I have end-stage Neuro-borreliosis, a suppressed immune system, and a few other "rare diseases"; however, during the last 20 years, as these body malfunctions have piled up, I have been very fortunate to find excellent care - with time, and I am grateful for that. But this SCC is a different kind of a bird; so unpredictable, we need to care for this disease almost as we do a toddler, "did you get your sunscreen, your sun protective clothing, your BIG hat" and so on - and on. I had my car windows treated with the highest UV A & B quality grade. and sunscreen 70% +. I plan my day with careful attention to the UV index ....Yet - I find myself sliding my hands along my face, arms, and legs detecting these rough spots or scales. This has become a pastime - an unconscious reaction when I watch TV or the like. Well - I can live with this, it's like taking care of your body, That which is emotionally draining is the attitude I often experience from my dermatology staff, They make an effort to be professional and kind (to some extent) but the underlying judgment is very palatable. I find I have lost faith in their professional judgment of the skin manifestations as well as treatment choices such as burning them off, electrocuting them, or referring to Moh's surgeries. I understand it is a matter of judgment - and what is the error margin? I am going to change until I find someone I trust.
Wishing you well Ginger, may your spirit soar above the clouds, and may you embrace every day. Grete