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Alcohol-related Neuropathy: Anyone had good treatment results?
Neuropathy | Last Active: Mar 14, 2023 | Replies (56)Comment receiving replies
Hello,
I am new to this group. I am about 9 months into my diagnosis of Idiopathic progressive Polyneuropathy. I was a heavy wine drinker for many years. Once I gave it up due to a medical emergency and began feeling symptoms while I was hospitalized starting in knees and legs then into my trunk, arms, hands and feet. The neurologists did blood work, EMG's, checked for diabetes and stroke-all negative. The only lab work they did not complete at the lab was the Gd1a test. They were out of supply of the regent used to test it. He seems to be leaning to PN that is related to alcohol [he too is not seeming too interested in me]. I am having a hard time dealing with it. I don't drink anymore and I am taking good care of my body now. I can't drive anymore either. Just here to listen and learn and to be with others with Alcohol PN.
Thank you all for listening 🙂
Replies to "Hello, I am new to this group. I am about 9 months into my diagnosis of..."
Hi pippy023,
Did stopping drinking alcohol help. I have stopped drinking alcohol and I didn't notice much difference. One benefit I get is my balance is better, maybe because my fear of falling is diminished.
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Hello @pippy023, Welcome to Connect. You are not alone and Connect is a great place to share experiences and learn from each other. I have idiopathic small fiber peripheral neuropathy and have shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/.
Although my neuropathy is not caused by alcohol, I also chose to stop drinking any alcohol just because it can damage the nervous system. The Foundation for Peripheral Neuropathy has a lot of good information on living well with neuropathy that you might find helpful here -- https://www.foundationforpn.org/living-well/.
It's good to hear that you have focused on taking good care of your body now. I wished I would have learned that lesson a lot sooner. Have you made any other lifestyle changes?