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Treatments for Lichen sclerosis besides steroids

Autoimmune Diseases | Last Active: Jan 27 10:08am | Replies (160)

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@becsbuddy

@beverlydelores. I’m sorry to learn that you have lichen sclerosis. I’m going to ask other members @lindajoan @joybringer1 and @artist01 if they will join the conversation.
Do you find that the clobetasol helps?

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Replies to "@beverlydelores. I’m sorry to learn that you have lichen sclerosis. I’m going to ask other members..."

Yes it does help. But I am afraid to use it very much because it also can cause problems.
So, I am trying to read everything I can about different moisturizers to use to help

@becsbuddy and @beverlydelores :
Thankyou, Becky, for referring me as an LS contact for @beverlydelores. However, I had an oral biopsy recently and am clear of OLP, LS, etc. I was diagnosed with aphthous stomatitus, (inflammation of the oral mucosa), which, after two years of misery with mouth ulcers and a very limited diet (no citrus, no acidic, etc.), has miraculously cleared up! Because I have IBD, and am also lactose and gluten intolerant, food almost became my enemy! It's wonderful now to be able to eat so many foods that I couldn't enjoy before.
Lactose and gluten intolerance are manageable, without the third limitation of acidic or citrus foods.
I wish @beverlydelores every success in her difficult journey with LS.

I do not use Clobetasol, but rather Halobetasol. My gynecologist (the fourth one as I sought answers) has me using Halobetasol. I asked her about Clobetasol, but she said the Halobetasol lasts longer. I go with whatever she is saying since we have been together for about 13 years. I use Premarin twice weekly, also. I had surgery to remove pre-cancerous lesions and that was not good, but necessary. It is important to protect the area and I use Vaseline in between the other two. I try to use it every day. I am on my fourth or fifth version of a numbing cream, compounded, that is 6% Lidocaine and mixed with Aquaphor. I tried Lidocaine and Lidocaine and Prilocaine before going the compounded route. I wear men's boxer shorts in a size medium (too large for me really) to avoid having underwear touching my sensitive area. I wear skirts at home so this works; however I can only wear this underwear beneath skirts in the summer when I leave home. Otherwise, if I have to wear trousers, which I do in the winter when I leave the house, I have to wear regular women's panties. You have my deepest sympathy for having this horrific problem. May you be one of the lucky ones and get through this. I know I am stuck with this for life. With all good wishes, @joybringer1

I suggest you all check out website “Stuff That Works” for everyone battling LS. Many ideas, experiences and knowledge.
Just had a biopsy last week. Hope it is negative. Had 3 laser treatments two years ago. Really helped but expensive. Around $2000 at a clinic in Halifax, Nova Scotia, Canada. There are same clinics in USA.