Connect
← Return to HPV P16 positive cancer
Discussion
Comment receiving replies
Your story is very interesting. Help me understand the 8.5 hour for a biopsy. My ENT used a tongue depressor and flattened my tongue where he could clearly see the tumor and reached back with tweezers and tore off a piece for a biopsy. He admitted he was surprised how big a piece he got.
We were also not told about long term side effects. The Rad Onc told me two weeks after treatment I would start feeling much better. That was bull! It actually got worse. Much worse. Only 2 months after chemo and radiation I developed a small area of osteoradionecrososis of the left jaw. I jumped on getting a second opinion with the Mayo Clinin and I uprooted my life and moved into a hotel in Rochester for two months to do daily hyperbaric oxygen treatments. I truly believe it made the dead bone fall off and then allowed healthy tissue to grow and prosper. It was amazing. Now what else don’t I know that might occur. Even if it doesn’t happen I’d like to know what could be possible so I can research, look for signs, and look at treatment options so I’m ready at the time. I don’t like surprised when it comes to my health.
Sounds like you are doing well, managing around your new life. Wishing you continued success.
Replies to "Your story is very interesting. Help me understand the 8.5 hour for a biopsy. My ENT..."
Connect
Every day is a struggle with the lymphedema, ropey phlegm and the plaque psoriasis. We keep plugging along and praying for everyone in our life. As for the Cancer it was at the base of the tongue deep in the throat. Not visible without a scope and some incisions. Not accessable from the outside of the neck. If it comes back, I was told that they would have to take my jaw and resection of part of my throat. (Feeding tube for life). Not even going to contemplate life as a monster. I have made peace with my Maker. My wife understands and I love her dearly. The Bible states that God will never give you more than you can take. Chronic pain is is a every day issue, but God has watched over me. Many times throughout my life, I was at the brink of death, and I was spared. I guess that God and Jesus are not finished with my time and that I have some special task to complete?! Praying for all of you and your loved ones. Do good things for all that you meet.