Your story is very interesting. Help me understand the 8.5 hour for a biopsy. My ENT used a tongue depressor and flattened my tongue where he could clearly see the tumor and reached back with tweezers and tore off a piece for a biopsy. He admitted he was surprised how big a piece he got.

We were also not told about long term side effects. The Rad Onc told me two weeks after treatment I would start feeling much better. That was bull! It actually got worse. Much worse. Only 2 months after chemo and radiation I developed a small area of osteoradionecrososis of the left jaw. I jumped on getting a second opinion with the Mayo Clinin and I uprooted my life and moved into a hotel in Rochester for two months to do daily hyperbaric oxygen treatments. I truly believe it made the dead bone fall off and then allowed healthy tissue to grow and prosper. It was amazing. Now what else don’t I know that might occur. Even if it doesn’t happen I’d like to know what could be possible so I can research, look for signs, and look at treatment options so I’m ready at the time. I don’t like surprised when it comes to my health.

Sounds like you are doing well, managing around your new life. Wishing you continued success.