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Meralgia Paresthetica

Neuropathy | Last Active: Oct 3 12:16pm | Replies (31)

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@hw43

I’ve been diagnosed with trigeminal neuropathy, the most painful experience I’ve ever had. Came on suddenly. Anyone else?

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Replies to "I’ve been diagnosed with trigeminal neuropathy, the most painful experience I’ve ever had. Came on suddenly...."

Yes. Branch V1 (upper, eye into the nose) is the worst one usually. V2 and V3 tend more towards numbness except on rare occasions. It started the whole thing for me.

Hi there,
Yes I have recently been diagnosed with trigeminal neuropathy from a wisdom tooth extraction that should have never happened. This was May 10th of this year.
The most excruciating pain I have ever experienced. I had been on lyrica for foot neuropathy, so the first treatment was to increase it and see if it helped. I maxed out at 600mg 3 weeks ago. I had a few days of relief then breakthrough pain. My oral pain specialist and family doctor have been working together. I have been decreasing the lyrica dose for the last week. Tomorrow is the first day that I am introducing trileptal.
Trigeminal neuropathy as you know , is constant pain. I have it at the extraction siteon the bottom left. Sometimes my teeth hurt, jaw hurts.
I am actually booked for an MRI in 2 weeks that will be of the trigemenal nerve in the mandible. This is to be done with contrast. The radiologist is basically a neuro radiologist. The point of this is to see what actually happened. How much visual damage? Is it cut?
I want to know. It doesn't change what I am dealing with, but I want to know. Trigeminal neuropathy is not a candidate for gamma knife or ablation. This from a top neurosurgeon who stated he couldn't help me as this is not neuralgia. I am praying the trileptal works. Not excited to put heavy drugs in my body, but I want my life back and to have relief from this pain. Will keep you posted. Lots of prayers and faith 🙏