Thanks for continuing to describe your LDN experience.
In terms of LDN's impact on the taper, won't it be self-evident from the lack of pain? If regular use of LDN helps you avoid remission - which I read the majority experience - won't that allow you to taper more successfully, and hence lower the total exposure to prednisone?
Or were you hoping LDN would let you speed up the prednisone taper faster than the usual schedule?
Just some thoughts.
It is interesting to see your prednisone schedule; it sounds similar to what I have now adopted:
9 am: ½ total daily dose
6 pm; 1/6 total daily dose
2 am: ⅓ total daily dose
I am trying to balance the desire to avoid morning soreness with prednisone's tendency to cause insomnia.
At my current high total daily dose (60 mg), insomnia becomes a problem. Last night I was able to sleep 7 hours with this regimen, although I did experience a little achiness around 4 am. Weirdly it felt like it was in the chest bones, not the usual shoulder, arms, and hips.
Thanks for the good questions @redboat. Indeed, I am "hoping LDN would let [me] speed up the prednisone taper faster than the usual schedule." Having been on prednisone for four months, I can't just stop it, as the effects would be drastic. But if LDN can take over some of the pain relief, I can taper more readily. Ultimately, I hope to maintain on LDN alone for the course of the PMR, however long that is. I also hope that LDN will work on my allergic contact dermatitis, which has been in remission since I started prednisone.