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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
I did an Enbrel trial back when it first was available but it had no effect. My PCP sort of predicted this as the AS had run its course; the inflammation was history; and I was left with fused joints and less pain. I got off the NSAID & Oxy and have taken Tylenol ever since. I don’t drink any alcohol so that made the transition to Prednisone tapering 3 years ago easier. Suspect others may have different experiences with biologics. I suspect they would have made a huge difference if available in the 70’s.
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I am currently on Enbrel for me it has worked the best. I have had Humira prior to Enbrel and it quit working. I stayed with Remicaid and Methotrexate. Never any side effects they just eventually stop working. My concern is Iritis and what will keep that under control. Although if I am stuck with steroids for awhile for PMR guess it should stay at bay.
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Do your liver scores up with Tylenol?
A normal ALT score for me is like 13 U/L.
But my ALT score went up to something like 95 U/L when I was taking 1000 mg of Tylenol every 6 hours in January. (This before being diagnosed with PMR and treated with prednisone - the pain was severe).
So I transitioned to ibuprofen, which was just as effective, and did not bother my liver. I've been afraid to take much Tylenol since. (My ALT score went back down to 13 U/L).
What's your experience? Thanks.