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Treatments for Lichen sclerosis besides steroids

Autoimmune Diseases | Last Active: Jan 27 10:08am | Replies (160)

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@beverlydelores

Hello, I have recently been diagnosed with LS. Also, I have several autoimmune problems. I had never heard of LS. before now. My dermatologist put me on clobetasol twice a day when it flares and tacrolimus all other times.
Does anyone have any side affects from these meds besides the burning? I am feeling really bad in the mornings and wonder if this medicine is the cause. Also, how do you know if it is progressing? Because it is hard for me to see what’s going on.
I have read that there is a laser treatment. Does it stop it from progressing? Does not wearing underwear help any? I have so much to learn about this awful disease I am on the internet every day reading about it. Any help is appreciated!

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Replies to "Hello, I have recently been diagnosed with LS. Also, I have several autoimmune problems. I had..."

A sad welcome to this horrible club. I'm also newly diagnosed. I use a mirror each time I apply the clobetasol. Best way I know to check what's going on. My regime has been the clobetasol OINTMENT at night before bed after soaking the area for 15-20 minutes. I really rub the ointment in for about 2 minutes. I'm to do this for 2 months, followed by twice weekly maintenance. Best of luck.

@beverlydelores. I’m sorry to learn that you have lichen sclerosis. I’m going to ask other members @lindajoan @joybringer1 and @artist01 if they will join the conversation.
Do you find that the clobetasol helps?

Beverly I would suspect the tacrolimus is causing the burning, simply because I was ok with the Clobetasol but couldn’t tolerate the tacrolimus. However people react differently to medications so you won’t know if this causes your burning problem until you can sort it out with your physicians. Good luck, hope this helps.