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Looking to connect with people who have non-diabetic neuropathy

Neuropathy | Last Active: 7 hours ago | Replies (913)
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@earlt

In the morning my feet don't burn and are not swollen. When i get up they start to swell and burn. When I sit on the bar stool to eat, they swell really bad. Anytime I have pressure against the back of my legs it's when it is the worst. I have seen a heart doctor and a neurologist, and everything checked out fine. Hand EKG sonogram on heart. Blood test, sonogram and EMG on legs. I'm not sure who to see next. Very frustrating. March 2023.

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Replies to "In the morning my feet don't burn and are not swollen. When i get up they..."
John, Volunteer Mentor | @johnbishop | Mar 11, 2023

Hi @earlt, Welcome to Connect. I also have small fiber peripheral neuropathy but don't have the burning pain, just some numbness and tingling. I have swelling in my legs during the day and was diagnosed with lymphedema for which I have to wear compression socks every day. They control the swelling during the day but do make my legs feel a little squished and tight. I was diagnosed after having the blood flow test on the legs looking for issues but they didn't find one so my Mayo Clinic cardiologist ordered a lymphoscintigram. Mayo Clinic has some information on the topic here - https://www.mayoclinic.org/diseases-conditions/lymphedema/diagnosis-treatment/drc-20374687.

Have your doctors mentioned or looked for possible problems with your lymph system?

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