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2 questions: Interpretation of CA19-9. SBRT methods.

Pancreatic Cancer | Last Active: Mar 24, 2023 | Replies (31)
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@carol23

My husband has Stage 4 Pancreatic cancer and received 18 treatments with folfirinox regimen. New scans show some enlargement of tumors and many small lesions in lungs. Dr. changed chemo to Abraxane and gemcitabine.
Ca19-9 was 21,000. Just wondering if anyone has had anything similar and seen good results and if this is worth suffering through the side effects. He is considering discontinuing treatment due to the side effects.

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Replies to "My husband has Stage 4 Pancreatic cancer and received 18 treatments with folfirinox regimen. New scans..."
davidtd | @davidtd | Mar 11, 2023

I too have Stage IV PanCan diagnosed October 2022. Initial CA-19-9 was 3600. Started fulfinorix treatment. Side effects were mild neuropathy and cold sensitivity. After 6 cycles CA-19-9 rose to 42000 and scans showed progression. Switched to Abrax+Gem. After 4 cycles CA-19 dropped to 1800; after 6 cycles CA-19 dropped to 821 and scans showed considerable shrinkage of tumours in Pan and Liver. Main side effects is fatigue and taste bud changes.

Prayers for your husband.

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