@pachab00, Like yourself, I am a patient. I joined Connect after my liver and kidney transplant because I was looking for someone else with the same rare disease, like I had. I wanted learn what kind of life could be in my future because I had never met anyone who had my rare, progressive disease. I was sent to Mayo by my transplant team, from my home in Kentucky, when my condition became critical.

Mayo Clinic has excellent information:
- Polycystic Liver Disease
https://www.mayoclinic.org/diseases-conditions/polycystic-kidney-disease/symptoms-causes/syc-20352820
- Enlarged Liver
http://www.mayoclinic.org/diseases-conditions/enlarged-liver/basics/definition/con-20024769.
and
NIH has excellent information
- Polycystic Liver Disease - NIH
https://rarediseases.info.nih.gov/diseases/9457/polycystic-liver-disease
Pachab00,
I have located a discussion that is a few years old, however, you can bring it to life again by making a comment or question there.
- My husband has PLD (polycystic liver disease) with an extremely enlarged liver
https://connect.mayoclinic.org/discussion/my-husband-has-pld-polycystic-liver-disease-with-an-extremely-enlarged-liver/
PLD is a rare disease, and not all doctors see it or treat it. Have you considered a second opinion at Mayo?