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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)
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@maggie14

I am not sure of what AS is.

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Replies to "I am not sure of what AS is."
DadCue | @dadcue | Mar 10, 2023

Ankylosing Spondylitis (AS)

https://www.mayoclinic.org/diseases-conditions/ankylosing-spondylitis/symptoms-causes/syc-20354808#:~:text=Ankylosing%20spondylitis%2C%20also%20known%20as,be%20difficult%20to%20breathe%20deeply.

There are several types of spondylitis but AS is the more common type and perhaps the most severe.

https://www.healthline.com/health/spondylitis-types#types

The mixture of PMR and spondyloarthritis isn't a good thing.

@saltyg and @jerseyjames

I was diagnosed with Reactive Arthritis (ReA) with Uveitis about 35 years ago. PMR was added to the mix about 15 years ago. I wasn't offered a biologic when PMR was diagnosed. I needed high doses of prednisone to keep everything under control.

Taking prednisone daily for 12 years didn't help my overall health and well-being. I wasn't able to taper off prednisone until Actemra (tocilizumab) was offered to me to treat PMR.

I was allowed to try Humira for uveitis but it didn't work as well as Actemra did for PMR. My rheumatologist said I couldn't take both Humira and Actemra. I was allowed to pick which biologic worked the best for me.

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