100% agree, make sure the doctor is a NET specialist. I’m on my 3rd hospital. The first 2 wrote me off last summer… hospital 2 was a major Boston hospital.
Mine is pancreatic that has spread to my liver, stage 4, inoperable.
Hospital 2 told me not to worry, liver failure is painless, would you like to be in an End of Life study?…..F/U, I’m not buying a shovel yet!
That was last August. Hospital 3 is Dana Farber in Boston, put me on chemo immediately, 12 rounds in 6 months and I’m still here.
Tumors have shrunk over 50%.
So, keep fighting and don’t believe everything that you are told.

Good luck