← Return to New and Need Guidance: What questions to ask about prostate cancer?

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@maxvt

There are NO “dumb questions!” Ask everything that comes to mind, write them down when they come to you so you don’t forget.

When you hear the word “Cancer,” becoming worried sick is normal and automatic. There are good stories; I went from “Cancer? Me?” to “It’s all gone? Really?” in six months during 2022.

Yes, get the book by Patrick Walsh. Read the “highlighted in gray” bits at the start of each chapter to determine whether you want to delve further into that chapter.

I had a PSMA scan, my Urologist was happy to say it was covered by insurance. This showed that my cancer was confined to the prostate gland.

I had an biopsy, revealing some (Gleason scores) of 3+3 , 3+4 and 4+3. Learn about Gleason scores.

I spoke with a Radiation Oncologist and with a surgeon to help me understand upsides and downsides to each therapy.

Read all the relevant articles you can from reputable sites such as MayoClinic,com, Cancer.org, MyClevelandClinic.org, to name a few. Print and compile into a binder is helpful.

After researching, I chose RALP from a surgeon, Dr Aaron Laviana, here in Austin TX, one my Urologist has worked with. When I informed my Urologist, Dr Trotter, in Austin TX, of my decision, he said that’s the choice he would have made in my case.

I chose surgery, as I read that radiation after surgery can be beneficial if needed, but, surgery after radiation is not a very viable option.

Weeks prior to the surgery, I spent several weeks of PT/Kegal exercises and I was fully continent after catheter removal, which was 10 days post-surgery.

My Urologist told me that the Pathology report indicated that the gland had another “node” of cancer that would have survived radiation.

Right after detection, I received a shot of Lupron, to slow/halt cancer growth. I had “hot flashes” due to that but got Venlafaxine 37.5 2x daily to control those.

When this began, in March 2022, I was 72 and had a PSA of 19.8. Now it is undectable.

Holler back with questions.

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Replies to "There are NO “dumb questions!” Ask everything that comes to mind, write them down when they..."

Vulcan: sorry about your Dad having to go through this stuff.

Fusion Biopsy is a good choice.
Ask your doctor to test for aggressiveness using the biopsy material: https://decipherbio.com/
Nccn.org will give you guidelines as to what to expect through different phases. It was created by DR’s for DR’s and patients.
Look at viewray.com. They make the only radiation machine in existence that combines an MRI and Photon radiation machine into one operating unit. The greater the MM in radiation treatment the greater the chance of healthy tissue issues. I had 5 radiation treatments.
Get a second opinion wherever you can. I had Gleason 3+4 restricted to the prostate and a 20.2 PSA. Keep asking questions. Its a process and coming back to this web site will help you make better decisions and provide emotional support for you and your Dad.

At what point of the process did you have a PSMA scan? Before or after biopsy?

How did you get in contact with an oncologist? As of right now we are only speaking with a urologist. I'm assuming you spoke with an oncologist only after a biopsy and when you were planning treatment options?

Were you told exactly why surgery after radiation was worse than pre radiation?

Very happy to hear you are doing good right now