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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)

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@michhino

I am 55. I can provide some insight about Peripheral Neuropathy with no harm to discourage you. But, I am a diabetic II since 2017 (after stroke) which was not known beforehand. My PN (feels as walking barefoot on broken glass) started approximately 2018 with my toes then affected my feet. They became tingling and numb but I just ignored it and thought it would just go away in time. I was deadly wrong!

Then, early 2019 is when PN start to escalate it moved upwards to calves and thighs then waist. Sadly, I became impotent and barely able to walk and painful nerve shocks started to occur within my entire legs. And I started to lose a lot of weight. I used to weigh 170 and weight shrunk drastically to 109 with severe PN and diabetes.

Initially, I visited emergency rooms, hospitals, clinics, neurologist, etc as PN became so unbearable and extremely painful ! ALL doctors and specialist only provided band-aids to help ease the discomfort such as gabapentin, juniva, insulin, deloxine, etc which was a waste of time and of course, lots of money. The ultimate cure was to amputate toes, feet, and/or legs. THIS IS ABSOLUTELY NOT AN OPTION AS I COULD NOT LIVE WITH IT !!!

I wear special shoes with cushions to help walk as I still do not feel my feet (tingling and numb) and barely my legs plus unfortunately impotent until this day. Now, I am insulin dependent as I check my glucose 3 times a day. I have short and long lasting insulin injections to help drop my glocuso especially when I eat and as far as PN, I ignore the discomfort and pain. And take rubbing reliefs such as Vapor Rub and Icy Hot, etc. and heavily rely on sleeping pills in hope I do not overdose on them….

My A1 for the past year or so, 10.9 , 9.8, 10.3 and unable to lower at a normal range for many years...

To say the least, I constantly worry that these medical conditions will eventually get the best of me but continue to pray that I will be ok.

Please exercise and eat healthy!

Good Luck!

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Replies to "I am 55. I can provide some insight about Peripheral Neuropathy with no harm to discourage..."

Sounds a great deal like my peripheral neuropathy. I am a Vietnam Veteran and I got sprayed with Agent Orange In Vietnam. In the treatment of my non Hodgkin's lampoma, I went through a several montis of Rchop therapy. R chop seem to only make the peripheral neuropathy worse. My newest extension is that I now (about 3-monthd ago) have heal spurs on both of my feet. Spend most of the time with my heels on ice or in a sitzs bath.

i am dealing with it by doing 5 exercises 3x a day under the guidance of a pt specializing in neuropathy and taking half pilll of Effexor 2x per day-itis a constant struggle for the rest of our lives-I alsoo pray the Rosary which helps most of all-Mike Storman

I hope that I'm not repeating this too often but Loma Linda has what they describe as a Cutting Edge neuropathy treatment and it doesn't sound super expensive for most people it's not covered by Medicare but I can't really afford it right now but I'm still looking to try to look look into getting the treatment somehow you can talk to them on the phone they will set up a video conference call with one of their MDS and they will describe the treatment with you and the cost and it is pretty reasonable if it helps they say it helps some people enormously they sent me a packet with a lot of information in it and I'm really interested in it I'm type 2 diabetic and I've had neuropathy I'm on gabapentin quite a big dose