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PMR: Are there treatment alternatives to Prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Jan 11 7:08am | Replies (175)
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@kathyjb

Please tell me more. I was just diagnosed. My Dr says prednisone is the only thing he prescribes. But I know coming off of it only causes a rebound and taking it does all kinds of awful stuff to the body. I just DO NOT want to take it. Tell me more about the alternative Ned you are taking, please. It’s the Naltrexzone I’m curious about. Does it have bad side effects? Would love to chat with you about this. I am sooooo in pain and unable to do hardly anything and that is NOT me. Thank you for a reply. Kathy

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Replies to "Please tell me more. I was just diagnosed. My Dr says prednisone is the only thing..."
claude67 | @claude67 | Mar 10, 2023

Kathy, I’m in the process of getting diagoned, so this is early for me. I was very active physically but now trying to figure out how to manage pain. I started at 40 mg of Prednisone, and now down to 5mg. Little inflammation and soreness in right shoulder but better today. I miss exercise but found movement in water helpful. I’m told Tai Chi is helpful and will start that on Monday. I tried light weights but pretty tough on joints. Will keep you posted in my search for quality of life. Claude67

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pkalkstein | @pkalkstein | Mar 10, 2023

I am 4 months into prednisone and one week into LDN. It is too early to tell about the effects. My hope is that LDN will allow me a faster taper off prednisone and then the LDN will maintain me until PMR decides to pack its bags and take off. My prednisone so far has gone from 20mg to 12 1/2 with no problems, but I know most folks slow down drastically after 10mg, and I guess that will be the test for me. I will post whatever results I find. Read about LDN, maybe also CBD (that got rid of my dermatitis). Good luck, Kathy.

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