Thanks for your response! I do indeed, have a very widespread variety of vascular/auto-mmune issues . .. . my doctors say they are going to write me up in medical journals someday! LOL. I was exposed very heavily to jet fuel back in the early 1980's when my issues first started (lived on road in back of Naval Air Station in Fallon, Nevada -training center for Top Gun pilots - . . . .they dumped jet fuel on a daily basis as they landed over the pastures where I was riding horses all day on my ranch. Every night, I had a sheen on my skin from the fuel.) There has been a fleeting thought that this disrupted my auto--immune system, but nothing has ever been proven. It just seems that I keep adding more and more all the time. This latest Susac dx is a real shocker . .. never heard of it . . . very neurological, and very scary. Neuro says it is VERY rare. I have an appointment scheduled at Vanderbilt, but it is not until August . . unless I get in on a cancellation before then. I will indeed take your suggestion and call NORD . . . I am the type of personality that wants to know what I am dealing with. Definitely helps me keep my fears more under control. I am 78, always SO incredibly strong (horse/goat farmer), and this has knocked me to my knees!