Other symptoms of your peripheral neuropathy besides pain, numbness?

Hi Steve @stallen, I just have the numbness and some tingling. I shared my neuropathy story in another discussion here that you might want to read through.
--- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/.

I think the symptoms really depend on the specific type of neuropathy you have although a lot of symptoms are common in the different neuropathies. Here are a few good sources for more information:
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/.

I've found that I need to exercise daily but just not over do it which sometimes makes it a little worse for me. Here's an article that might be helpful -- Exercise Can Relieve Pain for People with Neuropathy: https://www.brainandlife.org/articles/exercise-rx-for-nerve-pain.

Thanks for the info John

Have you any dysautonomia testing? For some people it progresses beyond the sensory and motor nerves to affect autonomic nerves. See this for more information: https://www.mayoclinic.org/diseases-conditions/autonomic-neuropathy/symptoms-causes/syc-20369829

i have it too-IIexercise 3x a day under the guidance of a pt sppecializing in neuropathy annnnnd take 1 half pilll of Effexor 2x day-anymore than that causes breathing poblems

Thanks for the feedback Michael. If you don’t mind me asking…how old are you and how long have you had neuropathy? And what’s your exercise regiment?
I ride an exercise bike 20 min in the am and walk 1 - 2 miles most days…although balance is making that more difficult.
Steve

The worst part of neuropathy for me is my feet. In trying to stay active and walk my therapy dog, my feet are constantly hurting. Burning at night! I have done yoga for years so that I could play golf, tennis, ski and work. Now I only do positions that reduce pain. Feet up the wall and floor stretches.
At 68 pain control is the main focus for me all day long.
CBD/THC balms help along with changing my body position frequently. I’ve started an anti inflammatory diet and am waiting to get in to a neurosurgeon to correct the disc bulging at L1 through L5.

I have neuropathy in both my hands and feet. I am lucky to have no pain but the numbness and burning in my hands I do have. I find with this illness I am definitely more tired and in fact I usually have a nap in the afternoon. As far as exercise is concerned I have never enjoyed it. I wait for those great feelings that supposedly come with exercise but I have yet to experience them. I exercise because I know if I don’t I will lose what muscle mass I have now. I can’t walk without a walker and I can’t stand alone so I work out on a small stationary bike and have my earplugs in and listen to my favorite music and that is the only way I can stand exercising!

bladder urgency I feel is related to my motor neuropathy, no control over bladder muscles related to motor neurons in that area; light headedness, fatigue and depression; blurred vision even with 20/20 vision. Considering laser therapy but cost a factor since insurance won't cover; now seeking reconsideration of policy since nothing else works but it seems insurance only covers what does NOT work and rejects new therapies. I believe this is a disease of the future, and when everyone has it, maybe insurance will be forced to cover new therapies.

Thanks for the reply Sean…sounds like we have some similar woes. I’m wondering your age and how long you’ve had your neuropathy.
I’m 60 …have been diagnosed for 6 yrs. Per testing , I have some autonomic involvement…have you been tested for that? Thanks again.

Thanks for comments. Age 82 with diagnosis of multi sensory motor neuropathy. Gave up just last week on Senexas treatment, cell signaling using electrodes attached to legs and feet. Useless in my opinion; tried for seveal months and now considering laser therapy instead. Realise there is no cure but have seen data indicating great improvement in blood flow and less burning and tingling in lower limbs. First diagnosed in 2018. New clinic wanted to sell me the entire program with nutrition and selling home laser machine I don't want. I've studied nutrition over 50 years and have perfected my diet which continues to keep me well all these years with no flu, colds, illness of any kind, so I do not want to waste money on all the extras they try to market at your expense. I just want to try laser therapy for a month before commiting my time to yet another treatment. I find you have to negotiate with these emerging new treatment clinics because we're so desperate for solutions and time is precious. A lot of them are simply avaricious, holding out false hope when quite possibly we simply need to adapt to a changing reality and accept this new world where our nervous system is breaking down with no cure in sight.