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PNET Surgery: My recovery journey

Neuroendocrine Tumors (NETs) | Last Active: May 22, 2023 | Replies (72)

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@hopeful33250

Hello @cottonpmhnp and welcome to Mayo Clinic Connect. I can certainly understand your confusion and concern regarding the biopsy. It is difficult not to have a succinct answer to a biopsy.

I have moved your post to a discussion with other members who have PNETs like, @outlawcancer @pavlina60 and @kim1965. While they might not have had any confusion regarding their biopsy, they might be able to offer their experiences with PNETs.

As you wait for your appointment with the surgical oncologist, I'm wondering what symptoms led you to the biopsy. Were other tests done to help with the diagnosis?

Here are a list of tests (from the Carcinoid Cancer Foundation website) used to diagnose and follow up if there is a suspicion of NETs. You might want to take a look and see if any of these were done.
--Diagnosis and Follow-up Tests
https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/

How long were you having symptoms prior to the biopsy?

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Replies to "Hello @cottonpmhnp and welcome to Mayo Clinic Connect. I can certainly understand your confusion and concern..."

Thank you for your reply. I was having nausea, vomiting and abdominal pain. It had been going on sporadically for a couple years but had worsened over the last 4 months. That was when they did the CT scan and found a lot of atrophy of my pancreas and then did an MRI that found the lesion.