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NET lung with Liver Metastasis (stage 4)

Neuroendocrine Tumors (NETs) | Last Active: Apr 20 9:33pm | Replies (19)

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@kim1965

@aliatl
I’ll try to keep it short, our diagnosis hopefully will help you some. My wife was diagnosed with mass on pancreas, and too many tumors on liver to count (inoperable). We immediately started monthly Lanreotide injections along Cap/Tem (Capeciatabin/ Temador) pill version which very effective working with Vancer Care Team. After 6 cycles (months), redid MRI, CAR scans, etc and achieved around 50% reduction in size of pancreas mass and similar reduction in liver. Cancer team had us do three more cycles to try to reduce further. We got to about 80% reduction which allowed surgery to occur 3/1, and have knock it down enough to be a mtn. Item going forward. Hopefully our story at least gives some additional questions ask your doctor about. Make sure they are NET specialists. Let me know if you have questions that I can clarify in our case at least.

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Replies to "@aliatl I’ll try to keep it short, our diagnosis hopefully will help you some. My wife..."

@kim1965

Thank you Kim. I will definitely bring it up at our meeting with the doctor next week. Good luck! Stay strong and positive!