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@jerseyjames

Interesting post as I also have been dealing with AS (since 1972, give or take). Over those decades I managed the pain with exercise and meds. AS has run its course and most pain gone as many joints are fused. Luckily I am not bent over but cannot paint a ceiling or catch a pop fly ball to save myself.

You did not mention your SED Rate and CRP readings. My rheumatologist uses those to help determine best Pred doses and timing of tapers. Not sure I always buy into that science as there are times i’m hurting and he is disinclined to raise my dosage. Currently at 4mg and will start 2 in day and 2 in middle of night, as mentioned in postings. Then down to 3.5 in a week or two. Wishing you and others all the best.

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Replies to "Interesting post as I also have been dealing with AS (since 1972, give or take). Over..."

My SED rate and CRP are always normal. I have like a minuscule up tick in CRP on Dec when I was diagnosed. It’s always been the same with AS I have a pretty severe case but controlled with biologic and lifestyle management. I don’t show inflammation in bloodwork but it is there big time. Without meds and taking care of myself I would not move. That’s amazing you have AS so long and can still function so well with fusing!

What medication are you currently on for AS? Biologic?