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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
I have also had problems with gabapentine and got off of a 2,000 mg dosage. I fully agree with stress as an issue. The stress can be psychological, physical, and even environmental with weather changes. For me (and it is all different for all of us) I find a little relief from a cream that my neurologist has compounded at a pharmacy. 5% lidocaine, 5% ketamine, 5% gabapentine. My concern with this compound is that my body will adjust to it and it will no longer remain effective. I put up with alot and use it only as a last resort. Keeping feet and hands warm is a must. I've tried all the meds but continue to try different B vitamins and combinations of essential oils mixed with THC or CBD. worked with ACL and various other herbs or amino acids. Keep trying, don't give up. AND keep notes on everything, because you can get confused on what you have or have not tried and for how long.
Replies to "I have also had problems with gabapentine and got off of a 2,000 mg dosage. I..."
Agree with using a compounded cream. There are an infinite number of possibilities. A compounding pharmacy can educate you about the various “ pain cream” recipes, and you can share this with your neurologist. I only use it at night, and sparingly, because it’s expensive.
What is ACL?
So glad you wrote this - I, too, use a cream and need to have the 5% ketamine added-everything else is pretty much the same - my primary doctor was not sure how much to have added so I can tell her 5% ketamine. I also take B vitamins trying to slow it down - have any of the THC or CBD's worked?
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@snagydude I just message my Neuro about the gabapentin not helping me much and I'd love to try a compounded topical. Does yours dry quickly? That is my main concern as my my pain is worst at work and I worry I would only be able to use the cream at night before bed. I share your concern about your body adapting to the drugs. Each time I've upped my dose of gabapentin it seems to work for about 6 weeks and then I am back to little to no relief. It is all very frustrating as I am walking a lot at work and that won't/can't change.