Hi there @suziek and welcome to Connect. Thanks for explaining your next step in discovering the nature of your condition. Do you only have symptoms in your hands or also in your feet? I just had a series of nerve conduction tests because my legs were just giving away at times. I found out that my issues are not muscle-related myelopathy but radiculopathy which is a condition that appears after trauma to the nerve endings. In my case, the cause was repetitive trauma from accidents and surgeries.

.......and I do remember the exploration of what one doctor thought was Carpal Tunnel Syndrome. The "other" doctor proved that my issue was my thumb joint. A partial tendon from my lower arm was used to replace the material that was not cooperating. It is great to have painless flexibility in my thumbs. However, there was considerable pain pre-surgery.

Please let me know what you decide to do about your situation. In fact, that is how we learn here on Connect......from other members who share their experiences. And that knowledge becomes powerful as we face constant decisions for achieving and maintaining our quality of life.

May you have happiness and the causes of happiness.
Chris

I had identical issues and also assumed my SFN was traveling. A Nerve Conduction study confirmed Carpal Tunnel Syndrome in both hands, with some nerve entrapment in my elbows. Wearing night splints on both hands (drugstore) is not fun, but it has greatly helped the CT symptoms. However, I still drop things, and I think the CT diagnosis is related to my overall peripheral neuropathy. Still researching about this.

My sister has the same problem. She had a hard time gripping things and dropped them often. After and MRI,
The surgeon told her the problem was in her neck, cervical problems.
She is scheduled for neck surgery on April 3.