← Return to scheduling sacrocolpopexy and cystocele repair...more than a little scared

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@pma58

@gailg That is me, I’m suppose to have the same surgery January 25 but I still haven’t decided if I’m going to or not. My biggest fear is having incontinence afterwards. They give you all the possible outcomes and this one scares me terribly. Right now I have a level 3 prolapse, bladder, bowel, uterus, but no incontinence other than an occasional dribble from coughing with a full bladder. I went through PT and retrained my bladder so my urge issues are pretty much gone. I’ve also figured out how much fiber I need daily to keep me regular with my rectocele. I’m 59 years old, in good health and am having minimal issues with the prolapse right now. If I do have the surgery I want it in January so it’s now or wait a year. I just keep going back and forth, I haven’t been able to decide. Anyone else have incotinence develop after surgery? If it happens I can do the sling but they said the urge may never go away. I don’t want more issues to develop from surgery.

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Replies to "@gailg That is me, I’m suppose to have the same surgery January 25 but I still..."

Thanks for helping me find you. I couldn't find your previous post. I know exactly how you feel. I was afraid of that as well since I had no issues with that either prior to surgery. My doctor explained to me that the prolapse can mask the incontinence. But what finally happened was I would get to the point where I couldn't pee because of the prolapse coming down so far. Then I would have to go in and get drained with a catheter. My doctor was so good with the catheter that you could not even feel it. I figured anyone who could do that was the guy to do my surgery. They did urodynamics testing within a couple of weeks prior to the surgery and found that I likely did not have incontinence primarily because of the prolapse. They can actually predict whether you likely would have incontinence once the prolapse is corrected. If you likely would be incontinent then they can correct for that as a part of the surgery. Of course, it is always an estimation as to how much to correct for that without having the opposite problem, but I just knew I could not continue waking up at night and not being able to pee. I had my prolapse for at least 10 years before doing the surgery. My doctor explained that if I was incontinent after the surgery that he could correct it but that he rarely had to do that because he can tell what he needs to do based on the urodynamics. Did your doctor mention doing any testing prior to the surgery? Did he put any odds on the probability that you would have any leakage afterward?

@gailg I really appreciate this conversation because I don’t have anyone I can talk this over with to help me make my decision. I don’t really know how long I’ve had the prolapse, as I think back I know my bowel began to fall at least ten years ago but the other pelvic organs involved may have been prolapsed for about three years with this past 1 1/2 years it’s been very apparent. I have read about the testing you refer to but have not had any nor are any planned prior to surgery. One of my surgeons is going to do a cystoscope but I don’t know when that’ll be done, either during or after surgery. I do know it’s meant to check how the bladder and urethra are working. My other surgeon did speak of surgical corrections if I do have leakage but did not put a number on it, I’ve read about 25% have some degree. It is interesting that you mentioned the prolapse can mask incontinence and has interfered with your ability to urinate because I’ve found that I can go longer than ever before needing to use the bathroom. When I get up in the morning after not going in the night I can let the dogs out and even feed them before heading to the bathroom. You would think I’d have a strong steady stream but I don’t, and depending on the angle of my torso I can change the stream from a mild one to more of a trickle, I’m sure it’s the prolapse and it has been in these last few months where it’s become quite noticeable which leaves me to deduce it’s falling even more. I feel very good about my two surgeons, they are reputable and have done many of these surgeries with great outcomes. I’m just not sure I’m bothered enough by the prolapse to have the surgery but if I don’t it might not go as well if I wait. I just want to be and feel normal again but the fear of incontinence is so strong, especially because my son is getting married next August .