@tenleyv, I want to share a small story that may be helpful. When my daughter was in grade school, a new student joined her class in 3rd grade who was immunosuppressed.

The part that I particularly appreciated was the courage and dedication of the family to educate others. They spent time educating the school population for the successful integration of their child to the benefit of other children and adults:
- Notices were sent to all parents with helpful guidance about what immunosuppressed means and what we can do to keep everyone in the class healthy.
- The mom and daughter presented to the class.
- They also started a school club about rare diseases and advocacy.

For me, I appreciated that my robustly healthy child got a new perspective. She learned not to take health for granted and to be more considerate.

@tenleyv, I'm sure you've seen these resources, but just in case:
- Tips for Supporting Students with Sickle Cell Disease https://www.cdc.gov/ncbddd/sicklecell/documents/tipsheet_supporting_students_with_scd.pdf
- A Guide to School Policy - Sickle Cell Society: https://www.sicklecellsociety.org/wp-content/uploads/2015/01/Dyson-School-policy-sickle-cell-1.pdf