Carcinoid cancer is so difficult to diagnose. I’m so sorry that you and your husband are going through this situation. This website has wonderful information and resources for you. The people are first rate.

I was recently diagnosed after being besieged by various symptoms. Luckily it appears we have got mine at an early stage and undergoing treatment every three weeks with Lanreotide.

Two things in my suggestion box are #1-contact your oncology staff. Many have nurse navigators to answer your questions and get you appointments with a nutritionist, pain management etc. #2-make an appointment with the oncologist just for you. Make a list of everything you want to ask, and be blunt, proactive. See if you can take a family member or friend so you have a backup.

Go to Carcinoid.org or have a friend help you with the internet stuff. But first contact the oncology office.

Sending prayers and strength for both of you.