Connect
← Return to Stage 4 Carcinoid tumor: What treatments have you had?
Discussion
Stage 4 Carcinoid tumor: What treatments have you had?
Neuroendocrine Tumors (NETs) | Last Active: Sep 4 12:32am | Replies (57)Comment receiving replies
Carcinoid cancer is so difficult to diagnose. I’m so sorry that you and your husband are going through this situation. This website has wonderful information and resources for you. The people are first rate.
I was recently diagnosed after being besieged by various symptoms. Luckily it appears we have got mine at an early stage and undergoing treatment every three weeks with Lanreotide.
Two things in my suggestion box are #1-contact your oncology staff. Many have nurse navigators to answer your questions and get you appointments with a nutritionist, pain management etc. #2-make an appointment with the oncologist just for you. Make a list of everything you want to ask, and be blunt, proactive. See if you can take a family member or friend so you have a backup.
Go to Carcinoid.org or have a friend help you with the internet stuff. But first contact the oncology office.
Sending prayers and strength for both of you.
Replies to "Carcinoid cancer is so difficult to diagnose. I’m so sorry that you and your husband are..."
did you have flushing, was it constant, did face and head itch bad, any eczema
Connect
Hi,
I've tried the oncologist, went there with a list of questions (with hubby) maybe that was a mistake, and the Dr, answer most of my questions with there will be bad and good days. If the diaree is out of hand, then it is a bad day. If his legs are swollen and painful (another bad day).
However, this site is great, The information that was shared by different people is very helpful.
I will try again with the oncologist, hopefully will they be more accommodating and helpful
Kind Regards