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I am unable to have a bowel movement on my own, have a rectocele, had stool in my vagina, and an inability to digest food. What other type of specialist should I see, what other tests can be done, and any ideas on other possible medical causes for my condition besides SIBO and chronic constipation? How can I better advocate for myself when no one has been able to help me regarding this condition? Any Diet or treatment suggestions, and how to manage this pain would be appreciated.

Here is my story:

Diagnosed with sibo & chronic constipation 3 years ago
Suffering from:
• Abdominal pain
• Nausea
• Vomiting
• Exhaustion and fatigue
• Chest pain
• Shortness of breath
• Rib pain
• Cold all the time
• Foul-smelling gas
• Muscle spasms
• 30 lb. weight loss
• No appetite
• Bloating
• Rectocele
• Stool in the vagina
• Fatty stools
• Malnutrition
• Inability to have a bm on my own
Present day:
• No regular bm since Jan 19 after MR enterography & drinking barium
• Diagnosed with fecal impaction
• Have tried:
• Magnesium citrate
• Miriax 3x daily
• 2 colon prep
• enema
• went to Er with no help
• As no one was able to help me decided to do colon hydrotherapy on my own
• did 8 colonics in 3 weeks, felt better
• Went off all supplements and motility meds for 2 weeks in preparation for another breath test
• no bm in 5 days after the last colonic
• Had one small bm on Sunday covered in fat and floating
• I restarted all my constipation meds that night.
• The following morning had diarrhea 4 x which had a layer of grease floating and bubbles on top and felt better
• Have not had a bm since even with meds.
• Can’t eat, sick stomach, can’t do anything, hopeless, no one can help me

Have had:
• 29 tests and procedures
• 3 gastroenterologists
• 2 functional medicine doctors
• 2 nutritionists
• 5 diets
• 5 physical therapists
• Acupuncturist
• Colon hydrotherapy
• Meditation
• Colon massage

Prescriptions tried:
• Linzess
• Motegrity
• Amitiza
• Sutab colonoscopy prep (2 X)
• 8 rounds of antibiotics (xifaxin 3 rounds, doxycycline, ciproflaxin, neomycin, Bactrim, tried augmentin but too strong)

every supplement imaginable including herbal antibiotics

• Mirilax
• Stool softener
• Magnesium citrate
• Digestive enzymes
• Probiotics
• Prebiotics
• Cod liver oil
• electrolytes

I've researched other probable causes and found that issues regarding your pancreas, liver and other organs involved in digestion could be compromised.

Please help with any path to wellness that I haven't tried for my condition and how to better advocate for myself.

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Replies to "I am unable to have a bowel movement on my own, have a rectocele, had stool..."

My heart breaks for what you're going through. Lots of stories (including myself, family members, on this site and others) about going to numerous doctors for help and getting no help at all.

I was diagnosed with exocrine pancreatic insufficiency (EPI) this past January based on a fecal elastase test. It confirmed my pancreas isn't producing the enzymes to digest food and was put on pancreatic enzymes to help digest food and absorb nutrients. I was suffering from the fatty stools, major weight loss (I lost 42.5 lbs. since mid-November), malabsorption and the inability to eat much food because I got full so quickly.

Have you had a fecal elastase test?

My experience has been due to malabsorption

There definitely could be an issue with your pancreas. You mood two tests: a stool fat test and a fecal elastase. What you are describing sounds like E.P.I. (Exocrine Pancreatic Insufficiency). At least one of your gastroenterologists should have ordered these.

I suffered for 30+ years misdiagnosed with IBS-D,
finally diagnosed with EPI at age 67 and my entire life has changed for the better!
Please get tested for EPI as soon as possible!!!
There is hope!

I'm just shooting from the hip from my own testing with gastro and bowel issues. They probably tested for these things but maybe not.
1. Elius
2. Diverticulitis
3. Twisted colon
4. Ulcerative colitis
5. Polyps
6. Celiacs ( although my celiacs doesn't cause any constipation). I hope you can find some answers. God bless.

By the way, I tried to apply to Mayo Clinic and they rejected me due to the volume of inquiries.

Thanks for your input. What brand do you use?

Have you found any food groups that may contribute to the gas, bloating, stomach pain and constipation? Do you know if they looked at your digestive enzyme levels during an endoscopy?

Have you had stool elastase testing? It may not be the answer to all your problems, but it sounds like you may have exocrine pancreatic insufficiency (EPI). Most of the literature on it describes diarrhea as a symptom. But I, and many others, have constipation with it.

I would definitely ask your gastro doc to order one.