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@barbiek

John - Thank you for the great link and explanation! I’ve been on the pred rollercoaster for PNR and GCA since September 2020. I find it helpful to keep a calendar/journal to document dosage, time of day pred is taken, any symptoms, and exercise. I refuse to take methotrexate, as I feel I KNOW prednisone and the effects it has on me…and I don’t want to start over. Mentally, it’s important for me to remember that tapering is NOT a race! I have “down” days, (hey, I live in the Midwest), but I try to stay as active as possible. I’ve learned to slow down and pay attention to what my body is telling me. And I never stop researching and learning , so this Connect site is great!

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Replies to "John - Thank you for the great link and explanation! I’ve been on the pred rollercoaster..."

Welcome to Connect @barbiek! It is a great site where we are all in this together and learn from each others experiences. You are right, it's definitely not a race when tapering off of prednisone and each of us are different.

Keeping a daily log really helped me also. Have you made any other lifestyle changes to help with the PMR/GCA?