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Anyone have cavitary MAC?

MAC & Bronchiectasis | Last Active: Sep 12, 2023 | Replies (67)

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@suzyqueue

At diagnosis, I had a 10 cm cavity in my upper left lobe. Plans to remove that upper left lobe came to a hault when my right lung collapsed. I've been on the big 3 for 5 years and Arikayce (inhaled) for 4 years. The cavity has shrunk to a 4.

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Replies to "At diagnosis, I had a 10 cm cavity in my upper left lobe. Plans to remove..."

I have a similar cavity in my RUL that one Dr wants to remove.
My quality of life is pretty good right now so I resisted and changed to another Dr that is monitoring me more closely.

What it’s like on the Arikayce?

How is your hearing doing with Arikayce?