@badi
I'm a 59 year old female, and I, too, am Stage IV Carcinoid. My original diagnosis came in 2007, at which time they removed a mass involving my small intestine. Over the years it has metastisized to lymph nodes, liver, abdomen, and lastly a small lesion on my right shoulder. In late 2019, serotonin levels were continuing to elevate as well as more lesions showing up. I went thru 4 rounds of PRRT in 2020, and so far, the spreading has stopped. However my serotonin is on the rise again.

All that being said, I would suggest asking if PRRT would be a helpful treatment option.

I experience bouts with diarrhea, and my monthly Sandostatin, now switched to Lanreotide, injections seem to make it worse for a few days, sometimes a week. Imodium is a regular for me.

I hope this helps, and keep researching and advocating!