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@exitframeleft

@user_ch98d0b5c I have patchy Non-Length Dependent Small Fiber Neuropathy (NLD SFN). No confirmed underlying cause, though I've had an Inflammatory Bowel Disease for 35 years, so I think that has to be the best bet. I've done all of the bloodwork, a Genetic test, an EMG (negative) and a skin biopsy (which confirmed DX). It is contained in my feet since onset about 2.5 years ago. Symptoms include burning sensations that are getting worse, tingling and numbness. Currently maxed out on Gabapentin at 3600mg daily but I don't think it helps much. I will say my stress level has gone way up the last few months and I have seen a direct correlation between higher stress and more burning in my feet. I think I will have to look at Gabapentin alternatives or adding something on top of it in the near future. I hope you are coping with your symptoms. That seems to be all there is with this-symptom management.

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Replies to "@user_ch98d0b5c I have patchy Non-Length Dependent Small Fiber Neuropathy (NLD SFN). No confirmed underlying cause, though..."

I have also had problems with gabapentine and got off of a 2,000 mg dosage. I fully agree with stress as an issue. The stress can be psychological, physical, and even environmental with weather changes. For me (and it is all different for all of us) I find a little relief from a cream that my neurologist has compounded at a pharmacy. 5% lidocaine, 5% ketamine, 5% gabapentine. My concern with this compound is that my body will adjust to it and it will no longer remain effective. I put up with alot and use it only as a last resort. Keeping feet and hands warm is a must. I've tried all the meds but continue to try different B vitamins and combinations of essential oils mixed with THC or CBD. worked with ACL and various other herbs or amino acids. Keep trying, don't give up. AND keep notes on everything, because you can get confused on what you have or have not tried and for how long.