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Head & Neck Cancer | Last Active: Mar 26, 2023 | Replies (107)
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I had 35 radiation treatments and 5 chemo all at the same time. RDiation was 5 days a week. I’m 15 months out from treatment. But drinking water is the worst ! My saliva is a constant sour taste. I can only drink water that has a powdered flavor in it.
Food is still such a struggle. Sometimes it won’t go down when I swallow. My mouth and esophagus are too dry. I’m wondering by now is this permanent ?
Replies to "I had 35 radiation treatments and 5 chemo all at the same time. RDiation was 5..."
Me too, water is the worst. I need powdered drinks as well. I have noticed that milk seems to neutralize the sour taste.
I drink a lot of milk.
Still having swallow issues at
16 months out.
Also have a new tumor on the bottom of my right lung.
Biopsy in 2 weeks.
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I’m sorry to hear about your side effects. I find it very interesting that my reaction to liquid is the exact opposite. I can only drink water. I can’t drink anything with flavor. I’m kind of glad to me off sodas but I would love to be able to drink orange gatorade again someday. I have found everyone is different. Some get their flavor profile back. Mine are still wonky after 2.5 years. Milk products are the worst, especially sour cream. Can’t even be in the same room when the container is opened. And I loved sour cream before. My salivary glands came back about 50%. I am not expecting anymore. The doctors told me 2 weeks. Then 2 months. Then 2 years. Now I don’t ask. Good luck in your continued recovery.