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@npostusa

Hi, forgive me but I feel your experience as mine has been somewhat similar. I retired from Pfizer in 2019 after 20 years as an IT generalist. That said, they were very good to me hence I was not that quick to think it was the vaccine. I had two shots March of 21 and of course I wanted Pfizer. In April I thought that a severe case of Lyme returned. I had pain on shoulders, arms, all the way down to my hips. In May we were realizing that the doxycycline was doing nothing. To be honest, it never did as I had to have antibiotics intravenously several times in order to clear it from my spine.
Around early May my doctor gave me some prednisone and immediately I felt better. About a week before my daughter’s wedding I was feeling the same and the doctor gave me another script of prednisone which helped me through the wedding. A long story short, I went to the emergency room a few weeks later and I could barely walk. There they gave me a spinal tap to make sure it was not Lyme. I was in so much pain, that I did not even feel the spinal tap. In the hospital they gave me a 1000mg of prednisone a day - and when I left I was told to see a rheumatologist and to take 40 mg until I saw him. It has been almost two years, and I am down to 3 mg. The last year I have dropped one mg at a time, and twice I had to go back to the higher dose. The good news is I am slowly getting better, and the issues you described are spot on. Everything from sweats, to chronic fatigue I have experienced. One other thing I have experienced has been weakness - sometimes I feel like I have no strength, and then other times it comes back. I pray you get well, and I hope this has helped you.

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Replies to "Hi, forgive me but I feel your experience as mine has been somewhat similar. I retired..."

Nothing to forgive and yes our journies are very similar and I'm so glad you're able to wean down at this point. The pain was excrutiating for 5 months prior to diagnosis and Pred. This morning, so far, as a weakness morning. Probably because I lowered the Pred by 5 mg. yesterday (which would seem a lot) but with a diagnosis of 'no GCA' it would do me well to come down from 60 mg. asap. This too will level off I'm sure. I pray you continue to get well. The days of no strength, we rest. Your post has definitely helped. Thank you so much.