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@njed

Like yourself, I've been on Dilantin for many years, 52 to be exact and my primary doc does check bone density about every 2 years. I also took phenobarbital for the first 20 years with Dilantin after getting diagnosed. Likely, when neuro docs say this can be a side effect or that can be a side effect, this means possible but no guarantees. I was also warned about side effects of long term use of Dilantin including gum growth which happened to me about 18 years ago. That procedure was no picnic. Several neuro docs have assured me that long term use of Dilantin can't cause balance issues or neuropathy. Even after a half century??

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Replies to "Like yourself, I've been on Dilantin for many years, 52 to be exact and my primary..."

@njed
I respectfully disagree with your Neurologist. I believe Dilantin and Phenobarbital were the cause of my Neuropathy and had a direct influence on my balance and coordination and also causing my Ataxia.
I took Dilantin for probably around 30 years until my Dilantin level became very unstable and I had no choice but to discontinue it. I'm sure the Anticonvulsants along with uncontrolled seizures and months of induced comas added to my problems.
I'm sure grateful my Gingival Hyperplasia was never as serious as yours.
Take care Ed,
Jake