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Doctors comments on side effects of medication
Epilepsy & Seizures | Last Active: Apr 8, 2023 | Replies (6)Comment receiving replies
@lsittll
I just saw your message for some reason I’m not getting emails anymore.
Sure, it can be hard on the bones I believe because of the loss of vitamin D. Especially the old anticonvulsants like Dilantin, Phenobarbital, Depakote, Mysoline, Carbamazepine. I have taken at least 2 of these drugs daily for the last 57 years and at least 4, maybe 5 some of the time. What does he say is causing the bone density loss? did you ask him if the bone mass loss could be stopped or slowed?
as far as kidney stones are concerned, I believe it’s only like one or 2% of the people taking that medication. I’ve never taken it and I’ve had 8 kidney stones. you should ask him what the perfect anticonvulsant is. I’d be curious to know. The only time I ever broke a bone, which was my wrist, I didn’t have osteoporosis or osteopenia.
Take care,
Jake
Replies to "@lsittll I just saw your message for some reason I’m not getting emails anymore. Sure, it..."
Like yourself, I've been on Dilantin for many years, 52 to be exact and my primary doc does check bone density about every 2 years. I also took phenobarbital for the first 20 years with Dilantin after getting diagnosed. Likely, when neuro docs say this can be a side effect or that can be a side effect, this means possible but no guarantees. I was also warned about side effects of long term use of Dilantin including gum growth which happened to me about 18 years ago. That procedure was no picnic. Several neuro docs have assured me that long term use of Dilantin can't cause balance issues or neuropathy. Even after a half century??
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@jakedduck1
Hello!
I did not ask him if the bone loss could be stopped because I already know it can with Calcium and Vitamin D supplements. I already take both of them because of my osteopenia. I have decreased the degree of osteoporosis to a lower level of osteopenia and taken Depakote during this time. It is just funny that he thought a hip fracture would only be because of the Depakote. The tone of his voice really added to the way it was funny.
Take care,
Laurie