Thanks.
I felt a small substernal bulge 5 years ago. An internist thought it was a lipoma. My GI ordered a CT scan that showed a "small" 4cm liver cyst, no f/u recommended. In Dec '22, at my annual check up. I mentioned I felt full after even a small meal. Fortunately, same internist looked back & suggested a f/u CT, which I had in January. It showed the cyst had grown to 9.5cm.he referred me to a GI Doc. I saw his NP the next day (:-)) . She'd checked the report w him & told her to tell me to see a GI surgeon (he never examined me, nor did she). Saw GI surgeon in about 2 was who discussed options and said he'd review it w an intervention radiologist colleague, who drained the primary cyst about 2 was later under local. 450 cc straw colored fluid, cytology report was negative. He told me it was likely to return and described the sclerosing procedure available should that occur. The recent CT also showed some portal hypertension and a gi doc who is a friend suggested I have a portal being study done. When it was done about 2 was after the draining procedure, we could see the cyst was back to its 9cm size, which I expected since I was again symptomatic.
The CT also showed some fluid l.l. and possibly related to a bladder situation, totally unknown to me. I have a urology consult end of this month. Pelvic ultrasound was negative (thank heavens, no ovarian cancer).
So I'll have the sclerosing procedure this week. To get this scheduled took MANY phone calls back to the doc's office, a delay in sending the referral, more calls from me to the on-call doc finally (what would indicate need for going to the ED?) and calls to their practice manager, the hospital scheduler, etc, etc. Self-advocacy: I have become invmcreasingly uncomfortable this past fee weeks. I feel like I'm 9 months pregnant from the pressure. I'm 70 and otherwise in very good health. All labs normal, etc. Stay tuned. What have other's experiences been with this? I want to get the genetic test....

Hello @pachab00. My PLD story is pretty dull. It wS diagnosed along with PKD which resulted in a kidney transplant. So far my liver function is still great and no significant issues as a result of the PLD. Best wishes. We are here for you💛