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Metastic prostate Cancer Survivors - longevity and quality of life
Prostate Cancer | Last Active: Sep 1, 2023 | Replies (124)Comment receiving replies
Been on Xtandi and Eligard since Jan. So far my psa, which was 20.8 in Nov, went to 0.4 in Jan. Was ln Casodex Nov and Dec. Felt good then. After Eligard 6 month injection and Xtandi noticed a big slow down in energy, being tired, hot flashes, and with the loss of testosterone, my testicles and penis have shrunk making it difficult to pee. This morning noticed hair in the shower after washing it. Is all of this normal? Since my psa was 0.4 I intend to see if the Doc's will maybe stop the Eligard but not the Xtandi for 6 months if the psa is much lower than the 0.4 and see what happens. My prostate cancer returned after 12 years as stage 4 and metastasized on ribs 7 and 9. Amy comments? Thanks.
Replies to "Been on Xtandi and Eligard since Jan. So far my psa, which was 20.8 in Nov,..."
I have been on Eligard and Xtandi for about 16 months
My side effects are similar to yours except I have chills instead of hot flashes
The status of the cancer is stable below 1.0
Does anyone else get chills?
I found out my cancer had metastasized in October of 2018. I have been off the Lupron injections after two years. I did 44 photon radiation treatments.
I had a robotic radical proctectomy. in 2018. My penis and testicles shrank and quit working. I had no libido. My libido has returned but nothing seems to work, Viagra and Cialis do not seem to help. I have a cancer masseuse who is willing to massage the groin area to try to stimulate the nerves. I think it helps psychologically.
At 12 years post surgery, how often were you required/scheduled for PSA testing? We had read that after 10 years it wasn't necessary. Sounds like that is not the case. Thank you for posting your journey.
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YA it comes back----I was told that I would be on the Eligard for the rest of my life and it would be supplemented with other testosterone blocking drugs. Eligard keeps the cancer cells from growing the the other drugs block the receptor sites so testosterone cannot FUEL the cells (sort of like retarding them) so they will be there but will not grow as rapidly. Bascially we are lowering the total testosterone in the body which should decrease its ability to stimulate more growth in cells. Sort of like halting it where it is.---but not curing it.