← Return to Recently Diagnosed with Nephroptosis (floating kidney). Anyone else?

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@colleenyoung

@jabrown0407, my mom had this when I was a small child. I've never met anyone else with the diagnosis. Her nephroptosis was discovered because of abdominal pain especially when she went from lying to standing. She had surgery to correct it. I remember being proud of nursing her to recovery after her surgery. 🙂

Most people with nephroptosis don't experience symptoms or require treatment luckily. Do you have symptoms? How was it discovered that you have nephroptosis?

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Replies to "@jabrown0407, my mom had this when I was a small child. I've never met anyone else..."

Hi there!
I was diagnosed around a year and a half ago, and due to quite painful symptoms, it affecting my availability to work, having to lie down multiple times a shift in public, embarrassing omg, I've had the surgery last week to fix it! I am in quite a bit of discomfort currently on day 6, but it has eased off swelling slightly past few days. I was just wondering if your mum could remember what recovery looked like for her, how long etc. They didn't give me any info at the hospital and I can't find many accounts online. Well done to ur mum and u 🙂 it's a weird ride to go on hahah