1. < Bones, Joints & Muscles

Upper leg pain and waking up every 1.5 hrs for last 7 weeks w/spasms

Posted by dnp2335 @dnp2335, Mar 4, 2023

I’m on 7 straight weeks of the weirdest symptoms. I’ve been to my primary Dr, sports med Dr, Sleep Dr and Neuro-muscular neurologist. None have seen this before which is weird. Sleep Dr ruled out RLS. This issue is only when I sleep so it’s not induced by body position. Once I fall asleep, I wake up every 1.5-2.0 hours every night and always on that schedule. I haven’t had one night making it 3 straight hours. When I wake up, my upper legs feel tight deep inside the legs and when I straighten them they spasm and the inner cramp releases and I can go right back to sleep. This pattern continues night after night. I’ve tried everything, epsom salt baths, quinine, thc, CBD, prescription muscle relaxers, warm baths, stretching, foam roller, heat pad, ice, Gabapentin, every sleeping position possible…you name it and I’ve tried it. Has anyone heard of this before and have any suggestions that I can ask the neurologist about on? I’ve also had sporadic muscle twitching since last March, 2022 but don’t have any muscle weakness. Thank you for any help. My legs are pretty sore throughout the day and if I sit at my office desk for 1/2 hour, when I stand up the hamstrings are so tight and hurt. Neuro thinking most likely a neurological issue but ordered blood tests and a thoracic spine MRI. They feel the brain, lumbar and cevical spine MRI’s do not point to being the cause to this issue. Thank you for any help.

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dmk | @dmk | Mar 5, 2023

Maybe try to find an excellent physical therapist to see if they have any ideas or suggestions. Many work with neurological issues. Continue with tests to try and figure out cause. Must be very frustrating

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1 reply
dnp2335 | @dnp2335 | Mar 5, 2023
In reply to @dmk "Maybe try to find an excellent physical therapist to see if they have any ideas or..." + (show)
@dmk

Maybe try to find an excellent physical therapist to see if they have any ideas or suggestions. Many work with neurological issues. Continue with tests to try and figure out cause. Must be very frustrating

Jump to this post

Thanks for the reply, I appreciate it. I’ve been going to PT for the last 6 weeks. Been working on core, building leg strength and stretching muscles in hips, legs, etc. No improvement and have 1 more week of the PT. Def frustrating. If I take the Zanaflex I fall asleep better initially and in between wake-up’s but still wake up each

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Mar 5, 2023

@dnp2335 - I wonder if this information from Mayo might help some?

--- Night leg cramps Causes - Mayo Clinic:
https://www.mayoclinic.org/symptoms/night-leg-cramps/basics/causes/sym-20050813

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1 reply
dnp2335 | @dnp2335 | Mar 5, 2023
In reply to @johnbishop "@dnp2335 - I wonder if this information from Mayo might help some? --- Night leg cramps..." + (show)
@johnbishop

@dnp2335 - I wonder if this information from Mayo might help some?

--- Night leg cramps Causes - Mayo Clinic:
https://www.mayoclinic.org/symptoms/night-leg-cramps/basics/causes/sym-20050813

Jump to this post

Thank you for this info. I’ll look through the list and ask my Dr about any of these possibilities that seem similar to my conditions. I appreciate it.

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win sturgeon | @cobweb | Mar 6, 2023
In reply to @dnp2335 "Thanks for the reply, I appreciate it. I’ve been going to PT for the last 6..." + (show)
@dnp2335

Thanks for the reply, I appreciate it. I’ve been going to PT for the last 6 weeks. Been working on core, building leg strength and stretching muscles in hips, legs, etc. No improvement and have 1 more week of the PT. Def frustrating. If I take the Zanaflex I fall asleep better initially and in between wake-up’s but still wake up each

Jump to this post

have you tried magnesium every day in the morning? My spams went away.

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1 reply
cookiegirl1944 | @cookiegirl1944 | Mar 6, 2023

Try 600 mg magnesium glutamate every day

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dnp2335 | @dnp2335 | Mar 6, 2023
In reply to @cobweb "have you tried magnesium every day in the morning? My spams went away." + (show)
@cobweb

have you tried magnesium every day in the morning? My spams went away.

Jump to this post

Yeah, been doing that since the start. The electrolytes, Vit D and B are all good. I’ve been through all the standard causes and unfortunately no relief yet.

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migunner | @migunner | Mar 7, 2023

wow, nice description, foot cramps and nerve pains wake me every 1.5 hrs, trying to get other issues under diagnostic accuracy but need to focus more on this, bone pains in shin bones and forearms feels like a toothache and mech manipulation does nothing, and nerve pains pinching twisting sensations in various parts of legs arms and chest, am on 2400mg neurontin and been on it for years, tried tapering off a few of years ago and this really started up, Dr said n/muscler so I hit the local hills 5 days in a row, sent her pics each day of the hills I climbed, only decision was back on the neurontin, but now the last couple years , especially after C19 Vacc and booster 1, moderna, refused booster 2, went nuts on me also after shingles booster for 2 days, just had c19 omicron and nothing worse than feeling like a cold, but vision, hearing, sensation in fingertips, vibrations and electricity feelings in hands and feet, side pain left just under rip cage, smell locks in certain odors, especially petrochemical, 1st time lasted 3+ months, sucked on black licorice taffy to offset the phantom odors, and on and on and on, should post this to general mailaise comments I guess, lol D.mg still smiling still Praying up to my Maker, Deacon Mitch,

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