Replies to That’s very helpful, thank you. I’ve been on IV steroids and Mycophenolate for about a year….

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“Chemo Brain” of brain fog in autoimmune diseases

Autoimmune Diseases | Last Active: Mar 6, 2023 | Replies (6)

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@vball91

That’s very helpful, thank you. I’ve been on IV steroids and Mycophenolate for about a year. I’ve stopped the steroids twice in that time because the Mycophenolate should’ve worked, but I got worse both times. So the steroids help, but I can’t stay on them for much longer. So I’m trying Cytoxan. I have to freeze my eggs first, because Cytoxan May cause fertility issues. I’m 29. But once that’s done, I think I’ll have a Cytoxan infusion once a month for six months.

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Replies to "That’s very helpful, thank you. I’ve been on IV steroids and Mycophenolate for about a year...."

Becky, Volunteer Mentor | @becsbuddy | Mar 5, 2023

@vball91 As you know, these autoimmune diseases are just so confusing and all the words are big. I feel like I’ve been learning a foreign language!
The steroids i was talking about are high dose steroids just before you get the cytoxin. The whole procedure takes about 3-4 hours so bring a good book. Another side effect i neglected to mention, is slight hair loss. I noticed the hair on my brush but my hair never looked thinner.
Good luck to you-I hope you get this under control! Becky

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