1. < Digestive Health

I’ve been sick for 7 months and no one knows why

Posted by shouqmagh @shouqmagh, Feb 1, 2023

Hello
In July I felt like something stuck in my throat and in my back it was very uncomfortable so I went to the Dr and he diagnosed me with GRED , I took the meds but it didn’t work .. after that the symptoms started to come and go
Suddenly I felt in so much pain I started vomiting so I went to another Dr he did endoscopy and colonoscopy and diagnosed me with Esophagitis and Ulcerative colitis and he put me on immunotherapy this was on august I started taking the meds for almost two months I didn’t get better I felt so tired and drained the trouble with something stuck in my throat was finally over but I started feeling like a burn sensation behind my breast bone sometimes the burning sensation goes to the breasts
I went back to the same Dr he did a chest X ray and he told me everything was fine it’s just a Chest Allergy but this sensation lasted for weeks finally I booked with a good Dr in my country and I had to wait for a month for the appointment in October I saw the new Dr and I described my symptoms to him he told me to stop all the medication and he described to me Dexilant and enemas the burning sensation was gone as soon as I stopped the meds , the feeling started again we switched meds for about three months in January the Dr decided to do endoscopy and colonoscopy again and he said it might be crohn disease and all this symptoms related to crohn , now I’m feeling that something stuck in my throat again and I also feel like a burning sensation in my chest , I’m really scared is it related to crohn ? I’m really tired I just want to feel good again please if you know anything answer me , ( sorry for my bad English)

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rozy288 | @rozy288 | Feb 27, 2023
In reply to @maggiefarren "Are you allergy to gluten or any food allergies? Some times people are not allergy to..." + (show)
@maggiefarren

Are you allergy to gluten or any food allergies? Some times people are not allergy to gluten but sensitive
to gluten or food can do a lot of things like gas / nausea and bowel problems

Jump to this post

I went gluten free for two months just to make sure the tests weren’t wrong .
Didn’t help at all ;(

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1 reply
shouqmagh | @shouqmagh | Feb 27, 2023
In reply to @rozy288 "I went gluten free for two months just to make sure the tests weren’t wrong ...." + (show)
@rozy288

I went gluten free for two months just to make sure the tests weren’t wrong .
Didn’t help at all ;(

Jump to this post

I'm praying for you rozy I hope you feel better

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joansmurphy | @joansmurphy | Feb 28, 2023
In reply to @frances007 "Hello there. Are you diabetic? That is the number one cause of gastroparesis, as I have..." + (show)
@frances007

Hello there.
Are you diabetic? That is the number one cause of gastroparesis, as I have been informed. I do not have this, but understand your frustration. pain and stress. I too suffer from GERD and have been on Protonix for a number of years. This drug has been helpful to me. Perhaps a food diary would be of help to you. I had to start one after being diagnosed with bile duct dilation, and was surprised at the number of foods that I like but can no longer tolerate. For example, no peanut butter, but almond butter. No dairy except Greek yogurt etc. I too was diagnosed with ulcerative colitis, or rather microscopic colitis. I understand how awful this diagnosis can have an effect on you.
As for stress, have you tried deep breathing. I take klonopin when I need it for my anxiety, and it too has been very helpful to me.

I wish you luck in getting the care you need that will enable you to live a fuller life free of pain, stress and everything else. Our stomachs can often be the holder of all of our emotions/feelings, and naturally our stomachs get upset when we are under a great deal of stress, like you seem to be.

Jump to this post

I think the food diary is a great idea for both you and the doctor. You can experiment with different foods and food groups and hopefully narrow down what if causing your pain. You have been through the mill and suffering so much. I have GERD and it does help to eat small meals more frequently, foods not very hot or very cold, stay away from spicy foods, caffeine & chocolate, elevate your head while sleeping. I really help the food diary gives you & your doc some direction. Don’t be afraid to speak up for yourself and stress how awful you are feeling. You can be firm while polite.

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mikejjb123 | @mikejjb123 | Feb 28, 2023

I have GERD and nausea for 5 years now. Noone can tell me why. I feel for you too! Mike

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1 reply
shouqmagh | @shouqmagh | Mar 3, 2023
In reply to @mikejjb123 "I have GERD and nausea for 5 years now. Noone can tell me why. I feel..." + (show)
@mikejjb123

I have GERD and nausea for 5 years now. Noone can tell me why. I feel for you too! Mike

Jump to this post

Thank you mike
I hope you feel better
Praying for you

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1 reply
mikejjb123 | @mikejjb123 | Mar 3, 2023
In reply to @shouqmagh "Thank you mike I hope you feel better Praying for you" + (show)
@shouqmagh

Thank you mike
I hope you feel better
Praying for you

Jump to this post

thanks again. if you get any answers please let me know. i will do the same. be well

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shouqmagh | @shouqmagh | Mar 5, 2023

Update
I did a CT scan for abdomen and pelvis with Oral and IV Barium
And every thing is normal and fine I also did ultra sound everything is good and normal and fine ..
I am still searching for an answer now it’s 9 months since I got sick … I just feel my body is betraying me and becoming against me I don’t know what should I do .. I still feel all the symptoms.

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shouqmagh | @shouqmagh | Apr 10, 2023

Hello guys this is an update
I finally got diagnosed with SMA syndrome and I have to gain weight or I might have surgery
It’s a rare condition that’s why it’s hard to diagnose
Sending you all love

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sandralewis62 | @sandralewis62 | Apr 11, 2023

Hello and so sorry for what you're going through, I was also with the feeling of something stuck in my throat and Dr Darido found gerd (which I already knew I had) but he also found what nobody else did in the other thousands of endoscopies, he said there's no medicine to cure that only to control the symptoms BUT he recommended the nissen fundoplication surgery which I did 2 months ago, and all the symptoms are gone! If that was the case, I recommend to look into this, But you HAVE to make sure to go to the best expert surgeon in these types of surgeries not just a general surgeon, best of luck and Good bless 🙏🏻

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