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I'm currently on 55 mg. of Pred for what was suspected GCA and having a really difficult time with it. Shakiness, extreme fatigue, exhaustion and weakness. Coordination is off in hands to wear I thought I might actually have Parkinsons or worse. Brain fog.
My thought was "is it the timing of the Pred"? These symptoms are really debilitating with a trip to the store wiping me out to wear I crash on the couch for a couple or so hours when I get home. Literally soaked with sweat, head to toe.
I take my dose at 7AM with food and then around 10:30ish, I'm famished again. This goes on all day. I eat a regular supper around 5PM and then everything starts to level off, but the hunger doesn't. I'm wondering about splitting the dose, but unsure how to do so.
Replies to "I'm currently on 55 mg. of Pred for what was suspected GCA and having a really..."
I had the same reactions with high dosage. I’ve banged into everything possible in the house and I found the hand shakiness and sweating awful. Then I’d start getting mad at myself which lead to being mad at myself for getting mad at myself. As my dose has decreased the side effects have as well. So hang in there. My temporal biopsy for GCA was normal so I was able to start decreasing dosage. Thinking of you; I know exactly how you’re feeling.
It's been a couple of months since being diagnosed with PMR. I started at 40 mg, and the first month was great with the pain gone. My doctor warned me, and he was right. Day 31 the wheels started to fall off with all the side effects as you described. But then, after the last month, I was able to start reducing the dosages. I went from 40 mg at the start to now 15 mg. I take 5 mg three times a day. The side effects lessen with each reduction, though still exist. I go to the gym in the morning before I take my first dose, so I can work out. Learning to be strategic... with the doses. This treatment with prednisone is brutal!
I think the prednisone is causing the hunger. I've gained 40lbs! in about a year! Never weighed this much in my life. I try to get into a routine of not snacking so much but can't control it. I'm going to try a carb reduction diabetes class at the local Y to see if that will help. Maybe accountability will help me. I prepare good healthy meals & exercise 6-7 days a week. Tapering now at 11 mg. Reducing 1 mg a month. Not easy but it is working for the reducing of prednisone. Good luck!
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Maybe change your timing…?
https://www.rheumatologynetwork.com/view/nighttime-prednisone-could-address-morning-stiffness-ra