1. < Digestive Health

Slow gi motility with severe constipation

Posted by sallyw133 @sallyw133, Feb 28, 2023

I’ve posted here before under other topics but decided to start my own thread. Diagnosed three years ago
With extremely slow gi motility, stomach down, but symptoms primarily in colon which takes 82 hrs to process. Been to numerous drs, including motility specialists, and just no relief. Also claim some pelvic floor issues so I’ve done therapy twice. My main problem is finding a regimen to maintain some kind of regularity. I’m on Bethanichol, normally for urinary retention, but helps with motility, and Amitiza daily. Then add in mineral oil, senna, dulcolax as needed. The dailies help some, but not enough, so gradually add in others, then diarrhea. Or increase dose if dailies and same. Then there’s the “is it diarrhea or overflow” issue? My gi is little help. All questions go through nurse who never gets details right or doesn’t call back for days. I’d switch, but I have no idea who else to go to as can’t go to just a regular gi. I have been on every constipation med and have even consulted a surgeon re an ileostomy, but that just sounds like a whole new group of problems. Any one there share these issues?

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sallyw133 | @sallyw133 | Mar 4, 2023
In reply to @astaingegerdm "@sallyw133 Are you asking how we get the prescriptions from Canada? I looked at a list..." + (show)
@astaingegerdm

@sallyw133
Are you asking how we get the prescriptions from Canada?
I looked at a list of Certified Canadian Pharmacies. My decision was based on their price for Motegrity as well as if they could provide a generic. Many of their drugs come from all over the world.
Each pharmacy explains the procedure of getting a prescription filled.

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Did you need a script from your doctor?

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1 reply
jerrysgirl3 | @jerrysgirl3 | Mar 4, 2023
In reply to @robintromp "Also, I have found a teaspoon of MCT oil in my coffee helps with morning bowel..." + (show)
@robintromp

Also, I have found a teaspoon of MCT oil in my coffee helps with morning bowel movements.

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What is MCT!?

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2 replies
Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Mar 4, 2023
In reply to @sallyw133 "Did you need a script from your doctor?" + (show)
@sallyw133

Did you need a script from your doctor?

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@sallyw133
Yes- You get a script from your doctor for a 3 months supply and refills.
Each pharmacy explains what’s needed.
They make it user friendly.
In my case I emailed a copy of my rx,
One can also call and speak to a person.

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Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Mar 4, 2023
In reply to @jerrysgirl3 "What is MCT!?" + (show)
@jerrysgirl3

What is MCT!?

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@jerrysgirl3
MCT oil stands for medium-chain triglycerides. This particular oil is easy to digest and is used in different medical settings.

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robintromp | @robintromp | Mar 4, 2023
In reply to @jerrysgirl3 "What is MCT!?" + (show)
@jerrysgirl3

What is MCT!?

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The benefits of MCT oil are numerous, ranging from gastrointestinal health to metabolic health, to better heart and brain function. It is a staple of the ketogenic diet, which emphasizes high-fat and low-carb. MCT oil is generally well tolerated and absorbed because it’s a medium-chain triglyceride (fat), as opposed to a long-chain triglyceride (LCT). Among its many health offerings, increased satiety and weight loss are proven benefits of adding it to your diet. MCT oil is a supplement and should be taken in small doses to assess tolerance before increasing the amount.

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1 reply
jerrysgirl3 | @jerrysgirl3 | Mar 4, 2023
In reply to @robintromp "The benefits of MCT oil are numerous, ranging from gastrointestinal health to metabolic health, to better..." + (show)
@robintromp

The benefits of MCT oil are numerous, ranging from gastrointestinal health to metabolic health, to better heart and brain function. It is a staple of the ketogenic diet, which emphasizes high-fat and low-carb. MCT oil is generally well tolerated and absorbed because it’s a medium-chain triglyceride (fat), as opposed to a long-chain triglyceride (LCT). Among its many health offerings, increased satiety and weight loss are proven benefits of adding it to your diet. MCT oil is a supplement and should be taken in small doses to assess tolerance before increasing the amount.

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Where can you buy it? I've never heard of it!

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1 reply
judithfraser000 | @judithfraser000 | Mar 5, 2023
In reply to @medicbynight "I also have gastroparesis because of a neuromuscular condition, and I too struggle with constipation. Linzess..." + (show)
@medicbynight

I also have gastroparesis because of a neuromuscular condition, and I too struggle with constipation. Linzess gives me terrible cramping, and eventually diarrhea. I did try one called Motegrity that seemed to work a little better, but my insurance didn’t want to keep paying for it. If I don’t use a fleet enema every few days I literally don’t have a bm. I am interested in looking into a cecostony, but it seems to be more commonly done in pediatrics and I’m having trouble finding an adult provider who is familiar with it.

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I take magnesium at night and probiotics after meals. I also drink water with meals as well as inbeteen. Yes I have flare ups when I eat hard to digest foods or large meals.

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1 reply
judithfraser000 | @judithfraser000 | Mar 5, 2023

I eat very carefully. No seeds. No nuts. No Brussels sprouts. No beans. Nothing hard to digest. Eggs, baked chicken. Gluten free and nut free bread. Lots of water. Bone broth. Cooked Potatoes and carrots. Warm water with a little lemon juice is good. Rice crackers are good. Sorry I know it’s hard.

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robintromp | @robintromp | Mar 5, 2023
In reply to @jerrysgirl3 "Where can you buy it? I've never heard of it!" + (show)
@jerrysgirl3

Where can you buy it? I've never heard of it!

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Whole Foods, Health Stores, Amazon

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1 reply
jerrysgirl3 | @jerrysgirl3 | Mar 5, 2023
In reply to @robintromp "Whole Foods, Health Stores, Amazon" + (show)
@robintromp

Whole Foods, Health Stores, Amazon

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Thank you!

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