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Esophageal Lichen Planus

Autoimmune Diseases | Last Active: Oct 11 2:53pm | Replies (108)

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@becsbuddy

@daisy46. And @snowfire How difficult for you! What changes have you had to make in your diet so that you can get nutrition? I can understand the weight loss before you got treatment, but are you still losing weight? I’m so sorry all this has happened to you. You know, you don’t sound bitter or angry, so that gives hope to others-thank you. How do you stay positive?

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Replies to "@daisy46. And @snowfire How difficult for you! What changes have you had to make in your..."

I haven't lost any weight. Nor have I made huge adjustments to my diet. It's rare to find a dr. with experience of elp and while I' may be the only patient they have with this issue, I am very fortunate that they listen! I also have lp in multiple unusual areas.

No, I am no longer losing weight. I look for protein-dense foods I can eat and/or drink. I eat fresh fruits and vegetables as often as I can. I have learned to love soup! I live my life by the belief that the only thing I can control in my situation is my attitude about it - so I try to live as full and as happy a life as I can under the circumstances. I remind myself and others that it could be worse and I am lucky that it isn't a life-threatening condition. I surround myself with positive, supportive people and fun activities. It helps that I'm retired so I can structure my own time.