← Return to “Chemo Brain” of brain fog in autoimmune diseases

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@becsbuddy

@vball91 I’m so sorry to hear you have cerebellar ataxia. That’s sounds so similar to what i have which is chronic lymphocytic inflammation on my brain. I first had rituxan but it failed after 16 months, so I,too, had cytoxan. To say the least, I was not thrilled. And, yes, I did have some brain fog. I don’t know if it was caused by the chemo or my disease. For me, it was never too bad. I just felt like I was walking around in a fog. I’ve been saving this article which you may find interesting:
https://www.healthline.com/health/brain-fog
The only problem that i found with cytoxan was the steroid loading done before each dose. I had not read, or been told, to avoid ALL acidic foods/drinks for about 24 hrs after the steroids. My lovely husband had fixed lasagna for dinner and after 1 bite, i was screaming because the pain in my stomach was so intense. ER thought it was a ruptured ulcer and had to give me morphine. After that episode, i really did some more research and was very careful. SO, be sure to avoid tomatoes and citrus!!!!!! Or anything acidic!
But, on the other hand, I thank God for all these medicines today!
Can you tell me more about your cytoxan regimen?

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Replies to "@vball91 I’m so sorry to hear you have cerebellar ataxia. That’s sounds so similar to what..."

That’s very helpful, thank you. I’ve been on IV steroids and Mycophenolate for about a year. I’ve stopped the steroids twice in that time because the Mycophenolate should’ve worked, but I got worse both times. So the steroids help, but I can’t stay on them for much longer. So I’m trying Cytoxan. I have to freeze my eggs first, because Cytoxan May cause fertility issues. I’m 29. But once that’s done, I think I’ll have a Cytoxan infusion once a month for six months.