Hi, I’ve just come across this website as I’ve been looking as well for a neurologist or clinic that might specialize in poikilothermia. I’m a 61 yo and suffer from heat attacks daily that can be brought on by physical activity, stress and even sometimes nothing at all. I’ve had two brain surgeries to remove a tumor from my brain stem… the latest was four years ago. While I have many disabilities after my latest surgery, the poikilothermic symptoms are the most problematic to living an independent life. I am sharing this as I need to find a specialist that could either help with treatment or management of these heat attacks as they are becoming more severe and leave me exhausted. Thanks for reading this and please let me know if this is the correct forum for this type of enquiry.

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