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Does anyone suffer from CIRS (Chronic Inflammatory Response Syndrome)?
Autoimmune Diseases | Last Active: 6 days ago | Replies (62)Comment receiving replies
Hi there, First of all I sympathize with what you and your daughter are going through. I'm still healing. however have come a long way in 8 months and I want you to know that hope is possible. She can get better. It's not a quick progress but I have come a LONG way and know she can too if she is dealing with CIRS.
To answer your question, I went on prednisone several of times while I was still undiagnosed. Personally I did not find any relief with this. While it may temporality lower the inflammation, it's not getting to the root cause and comes with many side effects.
As a first step, I would recommend finding a naturopath/functional doctor that specializes in CIRS. Next, work with them on testing to find out what exactly is going on internally (and perhaps externally) if she is dealing with mold. She could have the MTHFR gene that limits her detox capabilities. I grew terribly ill in an apartment with mold, however my partner was fine. Everyone is different. You can test your home using the ERMI swiffer sample.
If it's mold related, it's likely past infections have reactived from her weakened immune system. I had lyme when I was 11 years old that was dormant until I became ill. Treatment will be specific to her. This includes getting out of exposure (if mold related) opening drainage pathways (dry brushing, saunas, detox baths, movement.) Then introducing binders, herbs, and in some cases a 3-6 month dose of an antifungal if there is mold colonies within her body. Your functional doctor can help test for these things. Sadly, most of this is not covered by insurance however you can request the initial labs be done through quest/labcorp to help with some of the costs. Not all labs will be able to be done this way.
I'm simply sharing my experience and journey, however hers may be different. If you want to chat further 1:1 feel free to message me and I would be happy to connect. CIRS can be so isolating and challenging for the person affected and family/friends. You aren't alone and like I said, there is hope.
Replies to "Hi there, First of all I sympathize with what you and your daughter are going through...."
This sounds like my story with Lyme and mold. Thank you for sharing helpful information.
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Hi, there! Well, I'm in a similar (not fun) boat. I was exposed to mold for a long time (pillows and mattress) and also had a boil removed on my inner leg and ever since then, have been dealing with staph infections...I just haven't felt right at all for the last 6 months. I did a round of antibiotics (just super hard on my body) and now I'm dealing with some boils popping up at times, dizziness at times and strange stomach/liver problems and needs detoxing. What I'm finding helps is Hibiclens, boosting my immune system (probiotics, Vit. C, Vit.D, Calcium, multi and eating really, really well! Also, eating no dairy, no gluten, no sugar (as much as I can) and no or very little processed foods. Also, intermittent fasting helps too. I'm also post-menopause, which doesn't help anything. I've tried NAC (but, not sure about it long term), I love turmeric (liposomal) and I'm taking some tinctures prescribed by a naturopath. I'm also dealing with H Pylori and leaky gut...trying to heal all of these things. I really want to get better and stay better!! I'm in both camps of naturopaths and amazing doctors at Banner Health, Honor Health and of course, Mayo Clinic!! 🙂 I see the power in both sides...healing is what I want, for good! 🙂 Please let me know how you're feeling and if you have any tips for getting better and staying better. Best to you!!