Hi there, thanks for checking in. I'm still healing, however have come a long way in 8 months and I want you to know that hope is possible. I'm sorry to hear you think CIRS may be your root cause, however knowledge is power and having a diagnosis is huge in healing. I hope you feel encouraged to keep seeking answers.

As a first step, I would recommend finding a naturopath/functional doctor that specializes in CIRS. Next, work with them on testing to find out what exactly is going on internally (and perhaps externally) if you're dealing with mold. It's possible you have the MTHFR gene that limits your detox capabilities. I grew terribly ill in an apartment with mold, however my partner was fine. Everyone is different. You can test your home using the ERMI swiffer sample.

If it's mold related, it's likely past infections may have reactived from your weakened immune system. I had lyme when I was 11 years old that was dormant until I became ill. Treatment will be specific to you. This includes getting out of exposure (if mold related) opening drainage pathways (dry brushing, saunas, detox baths, movement.) Then introducing binders, herbs, and in some cases a 3-6 month dose of an antifungal if there is mold colonies within the body. Your functional doctor can help test for these things. Sadly, most of this is not covered by insurance however you can request the initial labs be done through quest/labcorp to help with some of the costs. Not all labs will be able to be done this way.

I'm simply sharing my experience and journey, however yours may be different. If you want to chat further 1:1 feel free to message me and I would be happy to connect. CIRS can be so isolating and challenging for the person affected and family/friends. You aren't alone and like I said, there is hope.