Rachel, One reason I started this thread “ invisible disability “ was mainly to bring awareness to this disability. Sue mentioned other illnesses such as breast Cancer, Diabetes,etc..etc.. The majority of these have large associations that raise funds for research, trial groups, and community awareness. That’s where our issues are usually put in a closet and opened up only when necessary. I’m very aware of the help other organizations get and give. A lot of us have to jump through hoops trying to find help. So many closed doors or MDs that run out of ideas. Example right now would be why are surgeons still doing spinal surgery ( unless life threatening) when they know that resources for that patient have little options? Or when that patient is deemed total and permanently disabled by Social Security and given 1200.00 a month to live on, given Medicaid and basically told good luck. That was the intention I was trying to open. Yes, for the most part I’ve hit the acceptance stage and will face the next chapter depending on what they will do next without worry. One reason I advocate for pre surgery counseling for spinal patients. I agree Mayo has superb care. I’m fortunate that I have one 5-10 minutes away and in my prior life have transported 100s of patients to the one in Jax. Especially Strokes, and active MIs. The team is already waiting for your patient at the rescue entrance as time is valuable for these patients. You got me started lol. If anyone is having a pity party, I recommend that you take the time and go to a special Olympics event ! Talk about trying? These young people are busting their butts. I volunteered many years in my prior life and these kids will inspire anyone….David